Please keep me in your prayers

BLWedge09

Administrator
Ok, another update. There's good news and not so great but also not so horrible news. The good news is that my pelvic,abdominal, and chest CT scans were clear. The not so great news, is that it probably isn't going to turn out to be a pure seminoma (very non-agressive) after all. The final pathology report still hasn't come back yet. My urologist said that he had talked to the pathologist, and at that particular time they were leaning towards it being embryonal carcinoma..or at least partially. Many testicular tumors contain more than one type. Embryonal carcinoma is more agressive, but not the most agressive. I've been told that it is basically just as susceptible to chemotherapy as seminoma is to radiation therapy.



My doctor explained the options going forward. You can just watch it very closely with scans, but I think there's a 15-30% chance of it returning. In my case, you can get a couple doses of chemo and it diminishes the likelihood of it returning to a very small number, or you can have an operation called an RPLND which removes all of the lymph nodes from the entire region down there. My doctor recommended against the RPLND because it is very invasive. I had already kind of hoped to avoid it based on things I had read. Since the scans indicate that it hasn't spread, he recommended watching it closely or the couple rounds of chemo followed by watching it closely.



Of course, we're still waiting on the pathologist's final report to come back, but I'm already pretty convinced that I'd rather go ahead and have a couple rounds of chemo and make the risks of recurrence go very low.



Anyway, I just thought you'd like an update. Please continue your prayers. They are working! Things could have been a lot worse!
 

TITNTUFF

New Member
Sounds like you have a good plan.

Attitude makes a big difference in treating these things.

Keep us posted.

We'll keep praying.
 

BLWedge09

Administrator
The plan is to start chemo on Monday at 9:30 A.M.. I haven't fully decided yet whether to go with 1 or 2 rounds, but each round is 3 weeks long. The first week consists of 5 days at 4-6 hours a day. The 2nd and third weeks are just 1 day a week for 30 minutes or so each. I'm leaning toward 1 cycle at this point based on the info Dr. Einhorn at Indiana University has given me. He is considered one of, if not THE, top doctors on this type of cancer and 1 cycle is his recommendation. My pathology has been sent there for a second opinion review as well. Please continue praying.
 

krh2

Administrator
[quote name='BLWedge09' date='04 February 2010 - 03:03 PM' timestamp='1265324590' post='155709']

Please continue praying.

[/quote]



Done..............
 

BLWedge09

Administrator
Sorry for the lack of replies...I've been a little busy. <img src='http://www.titanspot.com/Titan/public/style_emoticons/<#EMO_DIR#>/001.gif' class='bbc_emoticon' alt=':smt003' /> Well, one long (6 hour) day of chemo down, 4 more of those to go. The cycles for BEP chemo (Bleomysin, Etoposide, and cisplatin) are usually done for 5-6 hours each day of the first week, then just one day a week for the next two weeks. Those two days are somewhere in the neighborhood of 2 hours each.



I did get what I'm taking to be good news today. My doctor here in Birmingham talked to the TC expert at Indiana University, Dr. Einhorn, about the effectiveness of only once cycle of BEP as adjuvant treatment in a case like mine. The Indiana Dr. pointed him to a study done in Germany with 41 patients similar to me who were given just one dose of BEP as adjuvant therapy. So far, in 2-5 years, there were zero relapses. This seems to put it on course with 2 cycles but less risk of toxicity related to the drugs. Anyway, at the moment, we're going with a single 3 week cycle. The Dr. at Indiana has been doing it for sometime with basically the same results as when he went with two. So I feel pretty confident. After my local oncologist spoke to Dr. Einhorn, he said he felt completely confident as well.



My dad came over to my house and is staying with me for a little while. Normally, I'd rather be alone..but chemo drugs really have me nervous. So, him just being around here is has made me feel better.



As for where I'm getting the treatment... I had the surgery at Shelby Baptist hospital about 5 miles from my house. The folks there were some of the nicest and best I've ever dealt with at a hospital. Several of them knew my full story (work, cancer, etc.) before I ever met them. They make you feel like they care, and that goes a long way to making me feel more comfortable. The chemo is being done at my oncologists office at Brookwood Medical Center. It's just a few miles from UAB, and if you look at all these doctor's certificates, they all went through UAB at some point. My oncologist has been really good so far too, and again, that helps a lot.



You just never expect to hear that you have cancer at 29 years old (My 30th birthday is on the 27th). But, I know that God has a plan, and this is just part of it. Maybe this was just meant to make me an all around better person, because I haven't even been close to perfect. It does really make you appreciate everything you have and have ever been able to experience. I look at that part as a blessing. We get so caught up in our routines that sometimes we never really stop and think about all the great things we've been allowed to do. Life is good, and with God's blessing, I plan to experience a lot more of it!
 

mdawg4x4

New Member
Thanks for the update. UAB is an outstanding facility. I had my C6-C7 disc fusion at St. Vincents right down the road. Wish I had stayed with my original intent to go to UAB, but had relatives recommend St. Vs. But as you said, God is always in control and has a plan, whether you know what it is or not. Stay positive, God Bless, and still praying for you.



It is hard to understand cancer at such a young age. We have a Safety Engineer (late 20s/early 30s?) at work that went in for kidney stones. When they x-rayed, they found he has lymphoma. He is getting ready to start treatments as well.



If you get back to Meridian one weekend, let me know. I'll ride over to visit, if you can stand the company.
 

BLWedge09

Administrator
I'm finishing up my 3rd treatment as I type this. Thing have gone pretty good so far, and all the doctors and nurses have been extremely nice.



Just thought i'd post a little update.
 

BLWedge09

Administrator
Well, it's Saturday morning after my big full week of Chemo and I'm completely wiped out. I felt decent most of the week, but this morning I'm just drained. I still have to go back this Tuesday and the next for a little while each day for one more medicine. I just continue to pray that I'm doing the right thing and I will be able to get on with my life after this is over. With the Lord's help, I will. I don't want to sound like I'm begging, but please continue to pray for me. I believe so strongly in the power of prayer and know that it is exactly what I need right now. Thank you all for the thoughts and prayers so far. I could never put into words just how much they mean to me.
 

Homer

New Member
Thanks for the update, more prayers are on the way. Stay strong, stay positive, you're going to beat this thing.
 

BLWedge09

Administrator
Sorry for the lack of updates....it's been a very long month. My last Bleomycin treatment was on February 23rd. That night, my fever got high but I managed to get it down by midnight and the next day I felt normal again. But on the 25th, I started to get really sick. I had to call the doctor in the middle of the night, and get someone to come over and drive me to the doctor because I just got to weak to get myself there. Nobody's positive, but we think I actually caught the flu. My white blood count and Neutrophils were extremely low, so I couldn't fight off anything.I got 2 IV antibiotics and was sent home with two other strong antibiotics and Tamiflu. 1 hour after a dose of Tamiflu, I felt 100% better and my 102 degree fever was gone. So, here we sit on March 1st ...still taking antibiotics but feeling pretty dang good again. I have to go back to the doctor this afternoon to have my blood checked again and see if my white blood count and neutrophils are rebounding.



So, while the chemo is over (and yes I'm completely bald), I've still got to be scanned again soon to make sure there is no sign of cancer and have to avoid catching anything until my blood levels are back up. So, please continue your prayers. I can't express how much your prayers so far have meant to me.
 

ss350z

New Member
Good news so far. Although, I only know you though the computer, I keep checking in, and praying for you. Stay strong.
 

BLWedge09

Administrator
I just got the results back from all of my follow up CT scans from yesterday and everything is all clear!
 

BLWedge09

Administrator
[quote name='mcginkleschmidt' date='11 March 2010 - 10:16 AM' timestamp='1268324198' post='156217']

I'm glad to hear things are looking up. <img src='http://www.titanspot.com/Titan/public/style_emoticons/<#EMO_DIR#>/023.gif' class='bbc_emoticon' alt=':smt009' />



How is Lucky taking all of this?

[/quote]



He's just enjoyed me being home so much. He's going to be mad at me when I go back to work next week.
 
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